Tuesday, March 22, 2011

Update - March 22

There is not a ton of news to report at this point.  The injections continue to be difficult.  Cannon is fine leading up to it...he knows when he is having it...he knows which arm or leg he is going to get the injection in...but when it comes time to actually give it...he gets very upset and has even been known to lock himself in the bathroom. 

He eventually gives in but it does take some convincing and bribing.  He cries and fights...but we eventually get it done.  Truth be told I don't think it really hurts him...I just think he gets anxiety as we lead up to it.  I will say that he absolutely hates getting the shot in his leg...he very much prefers the arms...but he puts up a fight either way.

Recently, some friends of ours held a Battle of the Bands to benefit Soft Bones. We wanted to show some support so all 5 of us showed up a little early to take some pictures.   There were seven bands in all and most were traditional rock and blues bands...but the band that opened was your run-of-the-mill screamer band and Grace immediately voiced her opinion by crying her eyes out.  Even with the ear plugs they gave us...she was unhappy.  Cannon and Roger Clark were enamored and stood in awe as the lead singer screamed lyrics beyond recognition.  It was quite the scene. 

Additionally, Cannon continues to receive support from local friends at the elementary and middle schools here in Mountain Lakes.  We are so grateful to have support like this for Soft Bones and Cannon.  Thanks to everyone for all of their support and prayers.

All in all things are good and we have not seen a dramatic change since my last blog...although we continue to notice an increase in endurance.  More to follow.





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