Cannon is doing great! He continues to make progress daily although it is hard for us to see this since we are with him so much. However, one of my friends who hasn't seen him in a month or so had him over for a playdate with his son. When I went to pick him up he commented on how well Cannon was running while playing lacrosse and hockey! This is so great to hear.
Cannon asks to bring his lacrosse stick to school everyday so he can play at recess. I wasn't sure how much he was actually playing with the other boys until he told me that he needed to bring his own ball because the other kids won't play with him. I don't think they are being mean but they play pretty rough and Cannon knows he can't do that like they can. It heart-breaking to think about him trying to play lacrosse by himself, but it is also so encouraging that Cannon doesn't let anything get him down and he just does what he can to have a good time...he doesn't just sit in the corner and sulk.
His birthday is next week and the one thing he wants the most is a goalie lacrosse stick. He really is something else.
Rare disease day was last month and Alexion Pharmaceuticals had t-shirts made up for HPP awareness. Cannon took some to school and handed them out to be worn on Rare Disease Day. Here is a shot of his first grade class with all of their shirts on!
I continue to be amazed by Cannon's progress.
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